Before the young girl loses her vision, her mother takes her on sweet adventures to make memories

This heartwarming tale delves into the extraordinary story of six-year-old Cailee and her remarkable “sightseeing bucket list.” affected by familial, a rare genetic condition, exudative vitreoretinopathy (FEVR), Cailee’s limited time before losing her sight has inspired her and her dedicated mother, Catrina Frost, to embark on a quest to create unforgettable memories. This article highlights their inspiring journey and showcases the impact of determination and love in the face of adversity.

Familial exudative vitreoretinopathy (FEVR) is an inherited condition that affects individuals through abnormal retinal vascularization. With varying degrees of severity across family members, FEVR manifests in different ways due to its diverse pattern of inheritance and expression. This condition involves disruptions in the Wnt signaling pathway, which plays a crucial role in retinal vascular development. Genetic mutations in genes such as FZD4, LRP5, TSPAN12, ZNF408, and KIF11 interfere with this pathway.

Cailee’s story began at the tender age of two when she was diagnosed with FEVR. Understanding the challenges her daughter would face in the future, Catrina Frost resolved to build a “memory bank” filled with enriching experiences for Cailee. Their incredible journey commenced with a visit to Disneyland, where Cailee’s wish was granted: a magical encounter with Snow White and Belle. The joy and wonder on Cailee’s face were palpable as she immersed herself in this enchanting experience.

Eager to create more cherished memories, Cailee and her devoted mother ventured to the California coast to soak up the sun rays and bask in the beauty of nature. The next stop on their sightseeing bucket list awaits them amidst the towering majesty of the Redwood Forests, where Cailee will have the opportunity to appreciate the grandeur of nature’s wonders.

Cailee’s sightseeing bucket list goes beyond merely observing nature’s beauty; it fully encompasses various activities she aims to enjoy. Camping trips, fishing escapades, and participation in art and cooking classes are part of Cailee’s grand adventure with her mother by her side. Through these experiences, Cailee creates memories and develops valuable skills and a sense of independence.

A mother’s unwavering love drives Catrina Frost to ensure her daughter’s happiness, regardless of her visual abilities. Her vision for Cailee’s future extends far beyond sight itself. She envisions a life filled with joy, health, and success, where Cailee becomes an independent and empowered woman. Through their shared experiences, Catrina Frost aims to lay a strong foundation for Caylee’s growth and fulfillment.

Catrina Frost draws strength from a dear friend who recently lost her vision and shared that “it’s not dark” because memories enable the brain to recall images vividly. This insight fuels Catrina’s determination to provide Cailee with as many experiences and lasting memories as possible. Each adventure adds color to Cailee’s world, allowing her to carry vibrant images within her mind, even as her visual perception diminishes.

Recognizing the significance of their journey, Catrina Frost initiated a GoFundMe campaign to garner support for Cailee’s dreams. This campaign is a testament to the collective power of compassion and empathy. Countless individuals, touched by Cailee’s story, have contributed, enabling her to experience many heartwarming adventures that will forever reside in her cherished memories.

Cailee’s sightseeing bucket list encapsulates the essence of hope, resilience, and unwavering love. Despite the challenges posed by FEVR, Cailee and her mother demonstrate the profound impact that a mother’s determination and a community’s support can have in creating lasting memories. As Cailee explores the world around her, each experience becomes a vibrant brushstroke on the canvas of her life, ensuring that her journey remains vivid and inspiring, even in the face of adversity.

Cailee’s Sightseeing Bucket List: GoFundMe | Facebook

Via: [mymodernmet]